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Down syndrome: Speech and Language Development

Down syndrome is a genetic condition resulting from the presence of an extra 21st chromosome. This condition affects approximately 1 in every 700 babies born in the United States. Each person with Down syndrome is a distinct individual, endowed with their own set of abilities, personalities, preferences, and challenges. One high priority area of focus for parents of individuals with a diagnosis of Down syndrome is speech, language, and communication development. In this article we will discuss Down syndrome with a focus on speech, language, and communication development.

Possible Learning Style Strengths

Individuals with a diagnosis of Down syndrome are unique individuals. Research regarding learning style suggests strengths in areas including (not limited to):

  1. Emotional Intelligence: Many individuals with Down syndrome have strengths in their ability to connect with others emotionally, displaying empathy, understanding, and sensitivity to others’ feelings.
  2. Visual Learning: A strong inclination towards visual learning often means that tools like visual aids, picture cards, printed words, and picture and word-based instructions can be particularly beneficial in the learning process.
  3. Social Motivation: Many individuals with a diagnosis of Down syndrome are inspired by social interactions making group activities, play, and social interactions valuable tools for enriching communication and so much more.
  4. Persistence: Hard work and determination are additional learning style strengths often demonstrated by individuals with a diagnosis of Down syndrome.
Girl and mother at the park sitting in grass in spring exploring a butterfly. Girl has a diagnosis of Down syndrome.

Speech and Language Areas Possibly Needing Support

It’s important to note that these potential concerns related to speech and language vary in presence and scope from one individual to another. With appropriate support, early intervention, and tailored strategies, children with Down syndrome can make significant progress in these areas and develop effective communication skills. Area of speech and language possibly needing support are:

  1. Speech Sound Production:
    • Difficulties may present in speech sound production due to physical factors like smaller oral structures, difficulty planning and sequencing oral motor movements, low muscle tone, and/or temporary or permanent hearing loss.
  2. Language Comprehension (Receptive Language):
    • Individuals may experience challenges in their understanding of spoken and written language. This could lead to struggles responding to vocabulary, answering questions, and following directions.
  3. Language Expression (Expressive Language):
    • Expressive language challenges may be present including a reduced/delayed expressive vocabulary, shorter and less complex sentence structures, and difficulty organizing and expressing thoughts.
  4. Social Language (Pragmatic Language):
    • Pragmatic language difficulties can create obstacles during social interactions. Children may need support learning to initiate, continue, and take turns during conversation and interpret non-verbal cues like body language and facial expressions.
  5. Voice:
    • Voice-related issues, such as hoarseness or breathiness, can arise due to anatomical differences in the larynx, nasal congestion, and post-nasal drainage. These issues may affect voice quality, resonance, and speech intelligibility.
  6. Fluency:
    • Individuals may experience fluency problems, such as stuttering or cluttering. These challenges could lead to disruptions in the flow of their speech and their ease during communication.

Strategies for Enhancing Speech and Language Development

  1. Early Intervention: Proactive engagement with speech-language pathologists and other therapists and early intervention programs can provide you and your child with valuable skills.
  2. Use of Visual Aids: Using books, pictures, schedules, apps, and visual storybooks can build upon strengths in visual learning.
  3. Share Books: Routinely looking at books and reading stories together exposes a child to a wealth of language and provides limitless opportunities for children to use language.
  4. Encourage Social Interaction: Social settings like group activities, playdates, sports activities, and family gatherings offer rich opportunities for speech improvement.
  5. Repetition and Consistency: Regularly revisiting and reinforcing language concepts helps in retention and application.
  6. Incorporate Music and Songs: Music can be a fun and effective way to improve memory and language skills.
  7. Engage in Pretend Play and Role-Playing: Pretend of dramatize real-life situations to practice conversation and interaction.
  8. Use of AAC (Augmentative and Alternative Communication): Tools like sign language, pictures, picture communication symbols, devices, or apps can support language expression.
  9. Hands-on Activities: Engagement in activities like family events, exploring the community and nature, arts and crafts, experiments, dance, sports, cooking, music events, to name a few can make language more relatable, memorable, and attainable.
  10. Design a Language-rich Home Environment: Fill your home with language, respond to your child’s language and language acts. Encourage communication, exploration, experimentation, literacy, and more.

Enriching Speech and Language during Daily Routines

  1. Mealtimes: Discuss foods, their colors, tastes, and textures. Encourage descriptive communication.
  2. Bath Time: Narrate actions and introduce sensory concepts like hot/cold and wet/dry.
  3. Shopping Trips: Involve your child in list-making, object identification, and social interactions.
  4. Outdoor Walks: Use nature to introduce new vocabulary from what you observe.
  5. Reading Sessions: Regularly read together, discussing the plot, characters, and unfamiliar words.
  6. Board Games: Games that require conversation can bolster language skills.
  7. Family Discussions: Include your child in family talks, asking for their opinions and feelings.
  8. Interactive Apps: Utilize educational apps that focus on speech and language development.
  9. DIY Projects: Build or create something together, discussing each step.
  10. Picture Viewing: Browse family albums or magazines and encourage storytelling or description.
  11. Local Visits: Trips to places like the zoo or museum can introduce a plethora of new words and concepts.
  12. Cooking Together: Discuss ingredients, actions, and the science behind cooking.
  13. Storytelling: Create and narrate stories together, fostering imagination and vocabulary.
Child with dx of Down syndrome with nose pressed against a window.

FAQs

  1. At what age should my child with a diagnosis of Down syndrome start speech therapy?
    Early intervention is key. Some children begin as early as infancy, but it largely depends on your personal preference and the individual needs of your child and family. Usually, the sooner the better.
  2. Is sign language beneficial?
    Yes, many children with Down syndrome benefit from using sign language as a long-term mode of communication or bridge to spoken communication or other forms of Augmentative and Alternative Communication.
  3. How often should my child attend speech therapy?
    The frequency is based on individual needs. Consult with your child’s speech-language pathologist to determine the recommended schedule.
  4. Are there any apps or tools to support speech development?
    Absolutely. Many apps are designed to support speech and language development.
  5. How can siblings help in speech development?
    Siblings often play a crucial role by being speech, language and communication models, playmates, and motivators.

Additional Resources

  1. Language development in children with Down syndrome – Reasons for optimism (down-syndrome.org)
  2. Speech, language and communication – Downs Syndrome Association (downs-syndrome.org.uk)
  3. Language Intervention in Down Syndrome: A Systematic Literature Review (asha.org)
  4. Speech and Language Resources | National Down Syndrome Congress (ndsccenter.org)

Summary/Conclusion

Navigating Down syndrome presents a mix of challenges and inspiring breakthroughs. Individuals with Down syndrome, each with their distinct identity, add depth and warmth to our communities. Developing their speech and communication skills is crucial, fostering independence and enabling them to take control of their own narratives. With targeted strategies, steadfast support, and a nurturing environment, each milestone is a step towards greater achievement. As parents and caregivers, we have the responsibility to guide and applaud each advancement, helping every person with Down syndrome to achieve their highest speech, language, communication and life potential.

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